Today marks the day that we will be getting acclimated with the DEXCOM CGMS. Super exciting day in the Hunt household. We have fought for the approval for this. Our Doctor and Nurse have written reccommendation letters to insurance to explain why this is a necesity. We fought and we won! YAY! So over the moon excited this will open so many doors for us.
We are however scared about putting another infusion site on poor Elsie's little bum. She doesn't seem to flail at all in terms of the pump infusion site. She wimpers for a minute. We're sure its little worse than a finger poke but its only for a slipt second. She just never stops moving forward. We feel like we could learn something from her young spry ways. She was in ketoacidosis in June/July and was still taking steps on her own still trying SO hard to meet milestones she just kept chugging along. When we look back at how sick she really was its just crazy. Her first steps by herself were on June 12, 2013. She must have continued to get more sick after that because she never took steps after that. She mostly laid on the floor didn't even crawl much. She just sat in a chair on a lap, or laid on the floor and sometimes fell asleep. (this from a girl who can't sleep anywhere but her own bed)
We got home from the hospital and she was literally walking around as if she had been walking for months. It was so exciting for us - she even tried to walk in the hospital but was hooked up to so many things she really couldn't do that all so much.
But her resilience for life and the obstacles thrown at her is unbeleivable. Children in general have a non-skewed view on life. They haven't felt depression they are not capable of that - they fight so hard because they don't know how to give up. They are full of positive energy because the world hasn't yet taught them to be negative about things. If we could live in a world where this was true to adults and children alike; there would be no reason for tears to stream down our faces when Elsie's sugar gets out of control. Or when she has a low sugar and the panic and fear that flows through our veins like ice cold water.
Its amazing being Elsie's parents, but it is one of the scariest things we've ever done. We have cried and laughed and been so scared for our daughter more in the last 7 months than ever in her entire life. Diabetes is NOT an easy disease - its manageable yes absolutely but with managing it comes some crazy finessing. Because of how young she is the Doctors let insulin do the talking. We try ratios and see if they cause a low or a high and adjust the ratio from that point. THEN she grows and it all changes from there. It will constantly change like this until shes about 20 years old. So basically we're going to stress for the next almost 18 years of our lives - and we will do so with a smile on our face. Our fighter will be smiling and so will we, this is the adventures we take with Elsie and her Diabetes.
Take Care,
Sarah, McKenzie, & Elsie
(I'm sure there are spelling errors but it told me there were not - please make due I am NOT a great speller!)
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