Thursday, April 10, 2014

Appointment details...

Okay so we had our appointment with our endocrinologist yesterday - We were initially planning on typing this up last night but it was a busy night and we spent a while at the park and on a walk - gotta get this little lady some time to "play."

So last time we met with the endocrinologist (12/18/13) we were still doing injections and we discussed a pump as an option. Her A1c was 9% - we were doing awesome with keeping her levels "controlled."



We were put on the pump January 30th - and our average blood sugar since being on the pump was 210 (the last two weeks was 189). Keep in mind her target range is 80-200. We are doing great and we are also worried about what her A1c will be because of the high sugars we had a few weeks ago when she went through her growth spurt...

So the moment we've all been waiting for... her A1c was 8.3%!!! Yay!! we brought it down AND kept her in her target range for her A1c!! Her target is to be below a 9% A1c!! Doctor told us that at her age an A1c of 8.3% is amazing and that we are doing amazing and doing everything we should be. She has grown taller and gained weight since the last visit which means shes getting insulin and her sugars are very well controlled!!!



They always make us feel so good about our care for Elsie - Obviously we take care of her she's our baby and we love her so much but to hear that she is healthy and they have NO suggestions for us and to keep doing what we are doing is amazing!! It makes us feel so good and reassures us...

We always learn new things at these appointments and we truly are thankful to be meeting with such an amazing endocrinologist!! He is awesome at what he does and we never feel rushed! He answers all our questions and we are just so lucky to have the support we have!!

Scheduling our appointments for the summer we meet with endocrinologist again in August and Noreen in July (the 10th) and Noreen made a comment that she will not be celebrating Elsie's birthday with her this year... it was humorous because she was there with us last year in the PICU - We have this gem that we cherish so much and we love to watch over and over again. Elsie even loves it!! The support we experienced while at the hospital on her first birthday was amazing!! we scanned the room real quick in the video to show that there were so many professionals in the room - nurses, doctors, volunteers etc!! She had the BEST first birthday (spent in a pediatric intensive care unit) a girl could have!!


We've already started to plan her second birthday party - usually second birthdays aren't as extravagant as first birthdays but we are making this one as special as her first. This is her FIRST birthday as a healthy little girl and her first birthday not in a hospital and we are MORE than excited to celebrate that with all who want to!!!

Thank you from the bottom of our hearts for the support you all give us and thank you for keeping up with us on our adventures with Elsie & Diabetes...

Take Care,
McKenzie, Sarah & Elsie

Thursday, April 3, 2014

Update

We just wanted to take a moment and share that Elsie has been doing amazing since the insulin changes that we have made a few days ago. We are very excited about how much better shes been acting with more controlled sugars.

She is adapting well to the babysitting kids - we had a friend living with us for close to a month and she has since moved out and it was stressful for all having less room in the house. Elsie was much more cranky having more people living with us. It was a lot for a toddler to handle and stress can mess with her sugars too. Shes been eating better and more at a time - less snacking more mealing - for lack of a better word.

She officially LOVES Frozen the movie and loves the music to the movie. We have an appointment April 9th with our endocrinologist to discuss things. I think we've been doing well with the pump and are MORE than thankful for the DEXCOM. We actually found ourselves asking how we ever did diabetes without the DEXCOM before?





We see this sweet face and to us this face is perfection...what makes things emotional is thinking that ANYTHING could be wrong with this sweet beautiful girl? Looking at her, watching her, no one would ever guess she has a life long illness to deal with everyday?

We've decided that we are going to get healthier for Elsie. We are going to be cooking dinner at home every night and not eating out or bad foods as often - trying for never but we can't be perfect - We are going to walk and get moving physically to keep our bodies on the right path to being more healthy. This is our motivation;
     When we feel like NOT doing something healthy we are going to ask ourselves if Elsie gets to stop being diabetic because she's not feeling like it today?...NOPE so therefore there is NO excuse good enough to not doing something good for ourselves...

Take Care,
McKenzie, Sarah, & Elsie